Data Access Compliance Office (DACO)
The Data Access Compliance Office (DACO) handles requests from scientists for access to controlled data from the International Cancer Genome Consortium (ICGC).
The Data Access Compliance Office is accepting applications for access to Controlled Data (see controlled access data types on the ICGC-DACO Policy Page. This will give you access to Controlled Data in the ICGC Data Portal (Data Coordination Center, DCC) and the ICGC ARGO Data Platform.
Researchers and governments now recognize the great potential of data sharing for scientific research. However, caution is required when sharing data about individuals participating in genomic research because genomic data, like other types of medical data, can contain personal and identifying information. For these reasons, it is important for research projects and infrastructures to develop transparent, independent, oversight structures as well as good privacy practices. The DACO and the International Data Access Committee (IDAC) have been created to ensure that potentially identifying data from the ICGC will only be used by qualified scientists for public health objectives.
The International Data Access Committee (IDAC) is an independent oversight committee responsible for the monitoring of DACO activities. Notably, it will advise the DACO on the handling of complex access requests, contribute to the DACO annual report, and suggest necessary operational changes to the ICGC Executive Committee. The majority of the members composing the IDAC are not affiliated with the ICGC. IDAC members will bring to the attention of the DACO new developments in their field of research that could impact data access/exchange. They are appointed for 3 year renewable terms. The IDAC has broad geographic representation and includes individuals representing experts in ethics, database, and international law, cancer survivors, potential users of the data, and independent lay persons.